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Abstract #2128

Cerebral Accumulation of 3-Hydroxyisovaleric Acid in Adults Until Recently Unaware of Having 3-Methylcrotonyl-CoA Carboxylase (MCC) Deficiency

Marinette van der Graaf1,2, Udo F.H. Engelke3, Eva Morava4, Mirian C.H. Janssen5, Maaike C. de Vries4, Leo AJ Kluijtmans3, Bozena Goraj1, Arend Heerschap1, Ron A. Wevers3

1Radiology, Radboud University Nijmegen Medical Centre, Nijmegen, Netherlands; 2Clinical Physics Laboratory, Radboud University Nijmegen Medical Centre, Nijmegen, Netherlands; 3Laboratory of Genetic, Endocrine and Metabolic Diseases, Radboud University Nijmegen Medical Centre, Nijmegen, Netherlands; 4Pediatrics, Radboud University Nijmegen Medical Centre, Nijmegen, Netherlands; 5General Internal Medicine, Radboud University Nijmegen Medical Centre, Nijmegen, Netherlands


Recently, our group showed for the first time cerebral accumulation of 3-hydroxyisovaleric acid (3HIVA) in a pediatric patient with 3-Methylcrotonyl-CoA Carboxylase deficiency (MCCD). 3HIVA has been considered to have neurotoxic effects, but this is under debate. The present study reports on cerebral accumulation of 3HIVA detected by 3T proton MRS in two adult women with MCCD, whom deficiency was discovered by a positive neonatal screening of their healthy new-born babies. As the women had not been aware of having this disorder before and they have no or limited complaints, 3HIVA is postulated to have no or minor neurotoxic effect.